Dealing with PTSD: how a mother coped after death of teen son, who had rare genetic disease

Christina Strong developed post-traumatic stress disorder after her son died aged 15 having suffered 10 strokes in five years. She learned to control it after multiple years of therapy, and now helps other families whose children suffer from under-supported conditions [...]

11
Jan
JHF Campaign – Silver Award at the Markie Marketing Award giving

The Markies Awards 2016 – Our NewBornScreening Vital Step campaign took home the Silver Award for Best Idea – Social! Well done Ogilvy Team [...]

06
Apr
JHF participating in the UBS Community and Philanthropy Fair

Thank you to UBS Wealth Management for supporting HK charities in this event and their advisory service: Strategic advisory Exchanging knowledge and best practice Giving opportunities UBS Filanthropy Fair See also SCMP news clip online [...]

06
Apr
International Board Decorated

Professor Jan Smeitink, International Board Advisor to JHF and professor in Research of diagnosis and treatment of Mitochondrial disease in the Netherlands has been decorated with a Royal Honour (‘Dutch Knighthood) for his life’s work.  Congratulations to Professor Smeitink for [...]

06
Apr
CUHK launches newborn add-on test for Congential Adrenal Hyperplasia supported by Joshua Hellmann Foundation for Orphan Disease

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06
Dec
Thousands ‘need three-person babies’

Nearly 2,500 women in the UK would benefit from a fertility technique to make babies from three people, a study suggests. [...]

06
Jan
Three parent babies given green light by government

Parliament will now vote on whether to allow a change in legislation which would see the first three parent babies born by 2016 [...]

06
Dec
Guest of Honor at the China Club

Guest of Honor at the China Club Prof. Jan Smeitink and from Radboud University Medical Centre, The Netherlands, Nijmegen Centre for Mitochondrial Disorders  — with Dr. Hans Schrader [...]

06
Nov
SOUL ON THE WALL

SOUL ON THE WALL November 26/27/28 at Hong Kong Visual Arts Centre on 7A Kennedy Road. Selected works donated by the artists for sale in support of JHF [...]

06
Nov
2014 Fundraising Gala October 8th Gaia Ristorante

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06
Oct
Joshua Hellmann Foundation Charity Dinner on 8th October 2014

Dear Friends of JHF, The last JHF fundraiser was held four years ago and since that time, countless children’s lives have been positively impacted from everyone’s participation and contribution on that night. We wish to share thanks for the ongoing [...]

06
Sep
Three Parent Baby – Mitochondrial Replacement Therapy

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06
Aug
Euromit 2014

800 participants from 32 countries, including distinguished medical professionals, geneticists, nutritionists, psychologists and pioneer researchers and scientists gathered at Tampere, Finland during the week 15 – 19 June 2014, to discuss mitochondrial disease, treatments, next generation genome sequencing and the [...]

06
Jun
Art In Your Life Programme – Hong Kong

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06
May
Prioritising rare ‘orphan diseases’ of the medical world

Mitochondrial disease is one of the orphan diseases – an ailment that has been ignored by the medical and pharmaceutical industries because of its rarity. There is no money to be made from finding a cure for it. Governments also [...]

18
Feb
RTHK3 Interview on Orphan Disease

Christina Hellmann, Julie Andersen and Kimmy Lam were interviewed on RTHK Radio 3’s Kwok Talk show, hosted by Crystal Kwok on December 13, 2011 to spread awareness on orphan disease and the work of JHF.  Christina shared her experiences in [...]

11
Nov
Sponsoring on Hong Kong Annual Scientific Meeting on Mitochondrial Medicine

JHF hosted a special medical delegation led by Professor Jan Smeitink and his esteemed medical colleagues from the Nijmegen Center for Mitochondrial Disorders (NCMD), Radboud Ziekenhuis, Nijmegen, The Netherlands from November 21, 2011 to November 26, 2011.  JHF fully sponsored, and [...]

07
Nov