RESOURCES
ORPHAN DISEASE PATIENT AND FAMILY SUPPORT ORGANIZATIONS (HONG KONG)
- Children Catastrophic Disease Foundation (CCDF)
- Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
- The White Rose Family Foundation
- Chinese University Hong Kong neonatal screening (Metabolic Diseases)
NATIONAL AND REGIONAL ORPHAN DISEASE ORGANIZATIONS
U.S.A. :
- C.A.I.D. Foundation (Stop Childhood Autoinflammatory Diseases)
- Children’s R.A.R.E. Disease Network
- EveryLife Foundation for Rare Diseases
- Hide & Seek Foundation for Lysosomal Disease Research
- National Organization for Rare Disorders (NORD)
- Office of Rare Diseases Research, National Institutes of Health
- United Mitochondrial Disease Foundation
- Mesothelioma.net
United Kingdom :
European Union:
- BLACKWAN Foundation (A Swiss Foundation for Research on Orphan Diseases)
- European Organization for Rare Diseases (EURORDIS)
- Orphanet
Australia:
Canada:
China:
Philippines:
Taiwan:
OTHER USEFUL LINKS